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Where to find more information

Contact us

Contact us

    We have included a range of websites that we hope will help people living with dementia and their families.

    These include specialist dementia websites, charities, support schemes, NHS and government sites, carers information as well as technology, design and engagement.

     

    Dementia advice and information

    Alzheimer’s Society – information, advice and support. See services page for local services in Worthing.

    Alzheimer’s Society forums – online discussion forum for any one affected by dementia.

    The Butterfly Scheme – used in hospitals to ensure people with dementia are cared for well.

    Coastal West Sussex Mind – independent local mental health charity working in West Sussex.

    The Dementia Centre (dsdc) – at Stirling University is an international centre dedicated to improving the lives of people with dementia. Packed with information.

    Dementia Friends – for people wanting to understand a bit more about dementia.

    Dementia UK – Admiral Nurses who provide support to families affected by dementia.

    The Lewy Body Society – more about dementia with Lewy Bodies.

    Parkinson’s Society – more on Parkinson’s with dementia.

    Rare Dementia Support – including frontotemporal dementia.

    Young Dementia UK – for people affected by young onset dementia.


    Connect with others

    Twitter

    @DementiaUK

    @DementiaFriends

    @alzheimerssoc

     

    Facebook

    Dementia UK

    Dementia Friends

    Alzheimers Society Uk

    Facebook.com group for Posterior Cortical Atrophy awareness. The group is closed but you can ask to join.


    Carers’ advice and information

    Carers Support West Sussex – providing support to family and friend carers in West Sussex.

    The Carers Trust – support for carers.

    Carers UK – provide support and information for carers.

    Continence Foundation – treatment, prevention, causes, types and living with continence.

    Dementia Adventure – is a community interest company offering holiday breaks for people with dementia and their carers.

    Social Care Institute of Excellence – SCIE. Information, guidance, resources and accredited training for anyone supporting people with dementia.

    View SCIE’s dementia videos on Social Care TV.

    Shared Lives – supportive respite to give carers day/overnight breaks

    Social Care and Health – West Sussex County Council.


    Ideas for home and living

    Care Charts – used in many care homes and by home care agencies, record a person’s likes and dislikes.

    Designability – is a national charity joining expertise and knowledge to enhance people’s lives through the design of easy-to-use products.

    Jointly – is an app that makes caring for someone a little easier and more organised.

    Unforgettable.org – probably the worlds best online shop for products for people with dementia and memory loss. They work with the Alzheimers Society and make it easier for carers to find products that can help them at home.


    General advice and information

    Action on Elder Abuse – this can happen anywhere, in a persons home, care home or hospital.

    Age UK – advice, information and local services in some areas.

    Care Quality Commission – the independent regulator of health and social care services.

    Carewise – a financial advice scheme set up by West Sussex County Council providing an approved panel of qualified independent financial specialists.

    Citizens Advice – lots of free, confidential and impartial advice and links to local Citizens Advice branches

    Continence Foundation – treatment, prevention, causes, types and living with continence.

    Cruse Bereavement Care – somewhere to turn when someone dies.

    Department for Work and Pensions – government website with details of benefits and pensions and how to claim them.

    DisabledGo – maximizing independence and choice across the UK

    Disabled Persons Railcard

    Disability Benefits Helpline – information and advice about Attendance Allowance, Disability Living Allowance and Personal Independence Payment.

    Driver and Vehicle Licensing Agency (DVLA), – for driving licences and vehicle registrations.

    Dying Matters – encouraging open talk about death, dying and bereavement.

    Elderly Care – is a free website created by the consumer association Which? The website provides independent information on all aspects of care for older people. There is a carers hub, legal and financial advice and a care services directory.

    Healthwatch – an independent organisation for feedback on health and care in West Sussex.

    Mind – mental health charity that publishes information on all aspects of mental health.

    The Money Advice Service – free and impartial advice set up by the government.

    NHS 111 service, – information on a wide range of health topics. Telephone service gives access to round-the-clock clinical information, confidential advice and reassurance.

    NHS Choices – information about dementia.

    NHS Patient Advice and Liaison Service

    Occupational Therapy  – Therapy Directory aims to enhance the daily lives of those with mental, physical and developmental disabilities.

    Office of the Public Guardian and Court of Protection – provides information and advice on powers of attorney and deputyship.

    Relative Matters – based in Worthing, are independent care consultants, social workers and SOLLA care advisors, offering a range of care solutions.

    Relatives and Residents Association – is a charity supporting people in care homes, their relatives and friends.

    Social Care and Health – West Sussex County Council.

    Society of Later Life Advisors – (SOLLA), offer local specialist advisors for care and financial advice.

    Solicitors for the Elderly – independent, national organization of lawyers providing specialist advice for vulnerable older people and their families.

    Turn2Us – help if you are struggling with financial hardship.

    UK Homecare Association Ltd – the national association for organisations who provide social care and nursing services to people in their own homes.

    West Sussex Care Guide – plus supporting documents can be downloaded from the westsussex.gov.uk

    West Sussex Connect to Support – online resource with information about care and support across West Sussex


    Activities and engagement

    BBC Archive – Take a trip through memory lane with the BBC’s Archive Collections, broadcasts, documentaries, radio and TV programmes from the past.

    Adur and Worthing Wellbeing – local wellbeing services and information.

    Arts4Dementia – empowering people with memory loss through artistic stimulation.

    Engage and Create – a social enterprise dedicated to improving the quality of life for people living with dementia and those that care for them.

    Sporting Network – charity supporting older people by engaging them with memories of sporting moments and their passion for sport.

    West Sussex Library Service – offer a professionally endorsed booklist for dementia, a Reminiscence Collection and a Home Library Direct Service.

    Music Mirrors – enabling people to create a brief life story, in their own words, with sounds and recordings embedded.

    To contact Dementia Friendly Worthing please contact us